The world is indeed sometimes not friendly to mankind. This is Ayah Lundt, 1year 2 months old, was diagnosed with spinal muscular atrophy, a rare genetic disease found in one in10,000 children born worldwide. Her parents are in a race against time to raise $2 million for a one-time, potentially life-saving treatment before she turns 2. The treatment, called Zolgensma, is referred to as the world’s most expensive drug.
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“I think about the cost every day, and it weighs me down,” her mother, Mary Mithika, said through tears before taking a break to compose herself. “And then I look at Ayah and see her getting worse. As a parent living in Africa, what would you do if this is the situation you find yourself in and what can you do to save your child?”